What cancer were you diagnosed with?

Non-Hodgkins lymphoma with brain involvement


What age were you diagnosed?

21


Yagmur's Story

My doctor said I needed to have a PET scan, where I would have glucose injected into me and I would be placed in a machine that would scan the whole of my body, to identify exactly where the cancer had spread to in my body. That was scheduled for the week following my diagnosis. It was present in the scans that my disease was widespread, in my cervical throax, my armpits, my spleen, right femur (right leg) and in some other places. Every day since the day I was told of my condition the surgeons words kept replying in my head. It only took 4 words that came out of his mouth to change my life completely.

I begun researching about my condition and I looked for the best doctors in this field. I went to one as a private patient at The Princess Grace hospital and I explained everything to him on the 14th March 2016. He told me he worked at UCLH so I got a referral from my GP to UCLH from Whips Cross. I knew that doctors at the UCLH Cancer Centre are the best in Europe so I was reassured I was in good hands and felt safer. The Thursday that week I was at the UCLH hospital and my doctor had my PET scan results, they told me I have stage 4 NHL. He arranged for me to have a bone marrow biopsy and a lumbar puncture. This was to see if it had spread to my bone marrow, and give us more information about the lesion in the brain. After these procedures were done, they realised something else. The cancer had become very malignant (aggressive) and that it was now Non-Hodgkin’s lymphoma. They also showed their specialist neurologists who confirmed it is lymphoma in the brain.

Monday 28th March 2016 (I think). I was admitted to the hospital because I had severe headaches. I was taken up to the oncology ward and placed in a bed. I was visited by my professor consultant who confirmed the treatment I was going to have would be R-IDARAM. This was an aggressive chemotherapy treatment. He explained all side affects and what took my attention the most was fertility, he said it can be significantly affected. I asked “can we preserve some of my eggs before treatment," he told me “the procedure takes 3-6 weeks to do so, but we don’t have that much time, if we waited you would be in a much more worse condition than you are in now, and my role is to save you what would be the point of saving the eggs if your not going to be here." I cried hysterically whilst signing the consent form. I didn’t know what to think, I didn’t have an option, the only option I had was to accept the treatment that is going to save my life as they have proven it as orthodox evidence.

Read more of Yagmur's story here:

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