What’s On Lifting the Lid on Cancer Inequalities - Where's the Data? On 16th November we’ll be lifting the lid online and in-person once again, this time it’s Cancer Inequalities - Where’s The Data? We hear time and time again that there are stark differences in the experiences people have when diagnosed with cancer. We think it's time we unpacked why this is. And so, in partnership with Toral Shah (Founder of The Urban Kitchen), Trekstock is bringing together healthcare professionals, activists and policy changemakers to start the conversation, consider the biggest questions in cancer inequalities and discuss what needs to change. We'll be asking: Why is it that black women are almost twice as likely to be diagnosed with advanced breast cancer than white women? Why are cancer patients from black and minority ethnic backgrounds less likely to receive follow-up screening? We all know that there are inequalities in the provision of care, but how deep-rooted is this? Does the experience differ across the country/hospitals/cancer type? Back in 2018, Trekstock held its first Lifting the Lid on cancer in Black, Asian and minority ethnic communities with the late Saima Thompson, a Trekstock Ambassador and founder of BAME Cancer Support. At the event, we heard stories on the lack of understanding of healthcare professionals about different cultures and the challenges faced within them alongside how this impacted their health outcomes. Since Black Lives Matter and the Covid-19 Pandemic, it has come to the forefront for all to see that health inequalities exist within the NHS provision. But, how much do we really know? At the heart of the information gap lies the lack of data. This leads to an inability to get information resulting in the actual provision of care for different communities not being prioritised or brought to the forefront. One size does not fit all - quite literally in the case of wigs and prostheses. For real change and true equity of cancer care to happen for all, we need concrete data, but it's not collected and it's time we look at why and work together to bring about change. In memory of Saima and the work she started, Trekstock is partnering with Urban Kitchen and lifting the lid on what underpins this lack of data and asking the difficult questions: What isn't understood about health for those from Black, Asian and minority ethnic backgrounds and why is some data collected and some isn't? What data should be collected and how? Not all Black cancer patients/Asian cancer patients are the same - how the prevalence of cancer differs in sub-groups. How is lack of understanding and lack of data collection impacting the support needs of Black, Asian and minority ethnic communities? How does lack of understanding lead to taboos not being addressed and lack of cultural differences being addressed in care planning? Who decides on how care is delivered? How much are the needs of different communities left out of the equation and narrative of cancer care and why? What to expect Get a chance to hear stories from the community to highlight the issues of inequalities in cancer care. Hear from amazing experts, Toral Shah, Dr Adrienne Milner and Dr Georgette Oni about the complexities of why the data on ethnicity, disability and sexual orientation isn't being collected. Hear the facts on what we do know, what we should know and what we should do next. Meet Your Co-Host: Toral Shah: Toral is a nutritional scientist (Nutr Med), integrative medicine practitioner and health writer with her own consultancy, The Urban Kitchen. She specialises in cancer and diabetes, particularly in supporting patients from BAME backgrounds with both one-to-one support and group programs. Toral is passionate about educating society on the lack of diversity in healthcare, which leads to health inequalities and disproportionate death, particularly in cancer and metabolic health. Her clinical work ensures that cultural and socio-economic differences are acknowledged and supported. Meet Your Panelists: Dr Adrienne Milner: Dr Adrienne Milner is an expert on race-ethic inequality and Senior Lecturer in Public Health at Brunel University London. Her research addresses issues of health equity in terms of race, ethnicity, sex, and gender in education, political and sports contexts. Her current research focuses on racial disparities in COVID-19, high-risk injury sports and in the NHS and British medical schools Professor Kunonga: Professor Kunonga is a passionate public health professional with knowledge, experience and expertise in population health management, improving population health, tackling health inequalities and healthcare quality at a local, regional and national. He's currently working as Director for PHM for NECS as well as a consultant in Public Health for an acute and a mental health trust in the northeast of England. Dr Georgette Oni: Dr Georgette Oni is one of a handful of plastic and reconstructive surgeons in the UK who are dual qualified also in breast surgical oncology. She is a mentor to aspiring female surgeons, particularly from a BAME background. She is a keen teacher/lecturer/health advocate particularly overseas where she has been involved in health outreach programs and breast health education. She is the founder of the ‘Let’s talk about…Black Women and Breast cancer’ annual conference and a trustee elect for Breast Cancer Now. Stewart O'Callaghan: Stewart O'Callaghan (they/them) is the founder and Chief Exec of Live Through This, the UK's only LGBTIQ+ cancer charity. Building upon their personal experience of cancer and its services, they developed a charity that would improve the representation, information and support available to LGBTIQ+ people affected by cancer. The charity works to improve the patient experience through patient support, healthcare provider education and the production of bespoke resources for the LGBTIQ+ community. Charlene Young: Charlene's a bone cancer survivor, Cancer Support Coach and Health Advocate. She facilitates and delivers workshops supporting cancer patients post-treatment and beyond. She has taken part in several campaigns including the UK’s first all-black female cancer exhibition for Black Women Rising. Recognised for her advocacy work, she's recently been nominated for the Ambassador Award 2021 for her contribution to improving the Bone Cancer Research Trust’s Support and Information Service to all communities. Brad Gudger: Brad's a two-time cancer survivor, pioneer of the charity sector and his community. He's volunteered for various organisations and has worked extensively to advocate on behalf of young people. As a proud gay man, he's passionate about the representation and health outcomes of the LGBTQ+ community. He also recently launched his own charity, Alike. Which aims to combat isolation amongst people with cancer using a new innovative digital peer support app and UK wide peer support groups. Booking for this event has now closed.