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Thursday 21st January

Navigating life in your 20s and 30s is hard enough, let alone when you're trying to manage and cope with the late effects of treatment from a childhood cancer diagnosis. Many of you tell us that despite it being many years post treatment, you continue to have a daily struggle both mentally and physically. Family and friends often expect you to be 'back to normal' when you feel far from it.

That's why we're putting on an event in partnership with ICAN.CER to lift the lid on the late effects from a childhood cancer diagnosis with a young adult who has experienced it themselves. Drop your questions in the chat space and we will try and answer as many as possible. Please remember, no individual medical advice will be given.

We all know that the effects of cancer live on way past treatment ending but for many, this road has been an incredibly long and ongoing. For those of our community who have experienced this, it's during their 20s and 30s where these effects can be felt so much more. That's why we’ve partnered with our Young Adult Ambassador and founder of ICAN.CER, Ellen Bisci and a host of experts to openly talk about this topic.

Late Effects of cancer are numerous and can vary for each individual. They can include:

  • Struggling with mental health
  • Hormonal changes (early menopause, fertility issues)
  • Absence from school impacting their social support network
  • Delays in reaching milestones (going to university or completing school)
  • Physical impact of treatment (reduced heart function and cancer-related fatigue)
  • Some may struggle with social interaction and maintaining a job
  • Deterioration in bone density

We will chat about what Late Effects are and why only some people are seen in the Late Effects clinics. What are the most common late effects and what are the less well-known ones. We will also explore how due to improvements in treatment some late effects are now less common, the support available for you to access and how lifestyle can play a part in managing these.

Hosted by Ellen Bisci and Jemima Reynolds, Health Programmes Lead for Trekstock.  

Ellen Bisci 

Ellen is 25 and had Acute Promyelocytic Leukaemia when she was 9 and 12. The second time around I presented with a massive stroke. Although I am now 11 years cancer free I am still living with a lot of late effects due to the treatment that I had and that effect me daily including chronic migraine/headaches, chronic fatigue, secondary intracranial hypertension, postural orthostatic tachycardia syndrome and mild left ventricular systolic dysfunction. 

Late effects aren’t really spoken about and I think most people’s perception is that once you finish treatment, life is automatically back to what it was pre cancer, but for many of us this isn’t the case. My late effects started pretty immediately after treatment finished and they are still with me today, some have been constant and some have occurred years after treatment.I feel that the conversation needs to be opened about late effects and we need to get talking to educate us all.

The evening promises to be informative and candid in equal measure. 

Booking for this event has now closed.