Are you in your 20s or 30s and living with the late effects of a childhood cancer diagnosis? Many of you have told us that you continue to struggle, both mentally and physically, trying to navigate and manage the late effects following treatment. Alongside this, family and friends, often expect you to be 'back to normal' when you're feeling far from it. You're not alone. 

ABOUT THE EVENT

Join us for our 'What I Wish I'd Known' Late Effects meet up where we'll be speaking to Clinical Nurse Specialist Emma Potter and Endocrinologist Helen Simpson to get answers to your key questions about living with late effects.

After Emma and Helen have answered your questions, you'll have a chance to chat and connect with others who get what living with the late effects of childhood cancer is really like in your 20s or 30s.

Want to hear from the experts about managing some of the late effects you're living with?

Want to connect with other young adults also living with late effects?

We've got you covered, join us on Monday 12th July.


A LITTLE ABOUT OUR GUEST SPEAKERS

Emma is a Clinical Nurse Specialist in long-term follow-up at The Royal Marsden Hospital, London. She works with young people up to the age of 25 as they prepare for adult life following the completion of treatment for childhood cancer. She sees patients in a nurse-led transition clinic supporting young people as they move to supported self-management in the community or hospital-based adult care for childhood cancer survivors. A key part of this work is ensuring that every young person they see is offered a cancer treatment summary and individualised long-term follow-up care plan.

Dr Helen Simpson is a Consultant Endocrinologist working at UCLH. She was a Consultant at Addenbrooke's Hospital, Cambridge for 12 years and has been at UCLH since 2017. She is currently focusing on late effects and transition services, as well as patient safety, in particular during the Covid-19 pandemic. She is part of the clinician team at UCLH working to implement Epic and is an advocate of patient portals so patients can be empowered.

WHAT TO EXPECT

7:30pm - Team Trekstock will welcome you to the event. We'd love for you to join us 5-10 mins early so we can kick things off at this time

7:35pm - We'll introduce you to Emma and Helen. Then we'll be asking them some questions about living with late effects

8:00pm - We'll have an open Q&A session with Emma and Helen. If you have any questions that haven't already been answered, nows the time 

8:10pm - You'll now have a chance to connect and chat with the other attendees about your experiences, there's no pressure here - we just want to create a safe space for you to talk freely

8:30pm - Team Trekstock will wrap up the event. If you have any final questions please let us know

Booking for this event has now closed.